President

Susie Hodgson

Cell--(815) 508-2370

Home--(815) 498-6092

sue_angels@softhome.net

Susie is a Case Manager and an LPN at Kindred Hospital in Sycamore, Illinois.  As a nurse, Susie has devoted her life to caring for others with the majority of her time as a nurse in hospitals caring for the chronically and terminally ill.  She has also spent over 25 years caring for family members and loved ones with HD at home.  Susie cared for her late husband’s mother, who had HD, until her death in 1990, one month after her late husband, Bud, was diagnosed with HD.  She cared for Bud at home with the help of her three sons until his death in 1999.  Susie met her new husband Dave, in a HD On-Line Support group called Hunt-Dis, and in 2002, became a caregiver for his late wife Paula.  Susie and Dave now care for Susie’s oldest son Bob who has HD.  Susie’s middle son, Joe, tested negative for HD in 2004, and her youngest son, Buddy, was adopted so is not at risk.  She served on the HDSA Oklahoma Chapter Board during the 1990s.  Susie has been a member of the Illinois Chapter Board for over 2 years and has served as Vice President for the last year.  Susie is Co-Adult Advisor for the HDSA National Youth Alliance (NYA) and for the HDSA Illinois NYA.  Currently Susie lives in Sandwich, Illinois with her husband Dave and her son Bob.

Vice President

Charlotte Rybarczyk

(847) 259-3593

flameboyant1@comcast.net

Treasurer

Mary Bos

(630) 830-5329

mbos@netzero.com

Mary Bos joined the Board as Treasurer in February 2006.  Mary has worked as a Family Child Care provider for the past 16 years.  Prior to that she worked in all areas of accounting at the Corporate level and also as an assistant to an independent CPA.  Prior to joining the Board, Mary participated in several fund raisers for HD.  She encourages others to “get involved”.

Secretary

Dave Hodgson

(630) 386-3928

spiketdog@softhome.net

Dave Hodgson is a department manager for Phillip's Flowers in Westmont, Illinois. Dave has been a Board Member of the Illinois Board since 1989, and he served as President of the Board for 6 years.  Dave was caregiver to his wife, Paula,

who died after suffering with HD for 19 years.  Dave has 4 children, all at risk,

and lives in Sandwich, Illinois, with his wife, Susie Hodgson.

Stephen R. Clingerman, Ph.D.

(312) 864-6083

clingant@aol.com

Stephen R. Clingerman is the Neuropsychology Service Coordinator, Department of Psychiatry, at John H. Stroger, Jr. Hospital of Cook County, Chicago, Illinois, and has held this position for 13 years.  He obtained his Doctor of Philosophy degree in Clinical Psychology (Ph.D.) from Loyola University of Chicago in 1997.  He received his Master of Science degree in Counseling Psychology (M.S.) from George Williams College in 1983, and obtained his Bachelor’s degree in Psychology (B.S.) from the University of Illinois-Champaign/Urbana in 1978.  Dr. Clingerman has been on the Board of Directors of the Illinois Chapter of the Huntington’s Disease Society of America for the past 6 years and has assumed the Presidency this past year following a 3-year-term as Vice-President.  Dr. Clingerman also is currently on the Professional Advisory Board of the Epilepsy Foundation of Greater Chicago and has been on the ‘PAB’ for 7 years.  He is the author and co-author of numerous journal articles and paper presentations on diverse topics in clinical psychology and neuropsychology, and is a refereed journal reviewer. Dr. Clingerman also has made more than 50 conference presentations to professional and lay groups on topics including neuropsychology, psychosocial issues, and quality of life, and frequently presentations have focused on Huntington’s Disease and Epilepsy.

Thomas Barr

(708) 606-9932

thomasbarr@aol.com

Tom Barr is an electrical engineer who designs, installs and supports industrial control systems. He received his Bachelor of Science from the Illinois Institute of Technology in 1973 and is a Registered Professional Engineer in Illinois and Florida. Tom was caregiver to his wife Bonnie a former Bank Officer who died in 2002. He has two sons Alex and John.

Daniel Born, Ph.D.

(773) 275-5827

dankborn@gmail.com

Dr. Daniel Born is editor of The Common Review, the quarterly magazine of the Great Books Foundation, where he also serves as Vice President for Post-Secondary Programs.  He is author of The Birth of Liberal Guilt in the English Novel:  Charles Dickens to H. G. Wells, as well as essays and articles that have appeared in publications including The New York Times, Education Week, and Utne.  He lives in Chicago with his wife, Mary Classen, a former family therapist and social worker who served on the HDSA board of the New Jersey chapter in the 1980s, and his daughter Elizabeth is an undergraduate at the School of the Art Institute of Chicago.

Marilyn Kahn

(847) 438-2403

marilynkahn@comcast.net

Marilyn Kahn has been a Board member for over 10 years.  She actively enjoys helping with many of the Board’s fundraisers and helps run the Lake Zurich support group with her husband, Barry.  Marilyn works full-time for Pactiv Corporation and enjoys spending her free time with their family, which includes 6 sons and 9 grandchildren.

Gus Marchetti

(847) 356-2880

augustinemarchetti@sbcglobal.net

Gus has served on the HDSA board for over 8 years and has chaired the annual golf outing 7 times. He and his wife, Mary, live in Lindenhurst and Gus is a bank officer at State Bank of the Lakes in Antioch. His first wife died of HD and he has two daughters, one at risk and the other, with HD, whom he helps to care for. Gus also has 4 grandchildren at risk

Sharon & Clarence Wiese

(630) 443-9579

cwwiese@sbcglobal.net 

Sharon and Clarence joined the board of the Illinois Chapter of HDSA in 1977 when it was known as the Committee to Combat Huntington’s Disease.  During the past 29 years, they have performed many functions for the Chapter.  Sharon organized and hosted the Annual Brunch for more than 10 years and Clarence was President for 3 years.  For over 20 years they have acted as facilitators for Support Groups in Rockford, Peoria, Champaign, Lansing and Quincy. They have conducted training sessions in nursing homes in Northern Illinois for than 10 years.  In addition to these activities, Sharon has participated in numerous drug studies looking for ways to improve the care and treatment of HD.  Clarence has answered the Chapter phone and maintained the name and address file. In 1995, Sharon was diagnosed with HD.  Cathleen, their oldest daughter was diagnosed in 1999 and currently is a resident in a nursing home.  Another daughter, Nannette, has tested positive but is not symptomatic.  In 2004, their two nieces were diagnosed with HD.  Their son, youngest daughter, six grandchildren, two nephews and a niece are at risk.

Barry Kahn

(847) 438-2403

barrykahn1@comcast.net

Barry Kahn is a member of the National HDSA Board of Trustees.  He has also served as Treasurer of National HDSA.  Barry has been a Board member for over 10 years, of which 6 of those he served as President.  Barry, along with his wife, Marilyn, run the Lake Zurich support group in their home.  Barry and Marilyn enjoy spending their free time with their family, which includes 6 sons and 9 grandchildren.