Young People Living With HD

HD affects the entire family, not just the person with HD. It affects the entire family financially, socially and emotionally. Unfortunately, many times our young people are feeling scared, lost and alone. Often they become the primary or secondary caregiver to either a parent or sibling who is suffering from HD, all of this while living with the knowledge, uncertainity and fear that they have a 50/50 chance of having inherited HD.

Below is information about 2 dynamic groups for young people by young people. Each group has 2 adult advisors.

NYA---------Jean Miller and Susie Hodgson

Illinois NYA------Dr. Steve Clingerman and Susie Hodgson

2006 National Youth Alliance

HDSA National Convention, Milwaukee, Wisconsin

HDSA NATIONAL YOUTH ALLIANCE

The National Youth Alliance is for anyone age 9 through 29 who is living with Huntington's Disease in their lives. This could be a pHD (person with HD), someone at-risk, someone who has tested negative, a caregiver, a friend, etc. We are here to support each other, and fight to be the first generation WITHOUT Huntington's.

NYA Mission Statement

To provide a support network for youth with Huntington's Disease in their lives.

To bring attention and understanding of this disease from the community.

To help in any way we can to become the first generation without HD.

To learn more about the NYA:

HELP MAKE THIS THE LAST GENERATION OF HD

Inspirational writings of young people living with HD

HDSA NYA-ILLINOIS CHAPTER MISSION STATEMENT

The HDSA NYA-Illinois Chapter is a group of young people who are experiencing Huntington's Disease in their family. This group is open to any young person (age 9-29) in the Tri-State area of Wisconsin, Illinois or Indiana. We are dedicated to providing support, education, and community awareness of this terrible disease. We are affiliated with the Illinois Chapter of the Huntington's Disease Society of America.

HDSA NYA-ILLINOIS CHAPTER

To provide a support network for youth with Huntington's Disease in their lives.
To bring attention, awareness and understanding fo this disease to the community.
To help in any way we can to become the first generation without HD.

For more information about the HDSA NYA - Illinois Chapter please contact: Dr. Steve Clingerman or Susie Hodgson

Every year, HDSA and the NYA sponsor scholarships to the National Convention. In 2010, the National Convention will be in Raleigh, NC. For information on how to apply for an NYA convention scholarship, visit this link:

HDSA National Youth Alliance