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HDSA ADVOCACY: Help Make HD a National Priority!
Nearly everyone
affected by HD has trouble obtaining disability benefits. HDSA is leading a national campaign to address this problem,
and we need your help!
A bill in Congress, HR 678, The Huntington’s Disease Parity Act of 2009 would revise the current Social Security Administration (SSA) guidelines for determining
disability caused by HD. It would also eliminate the two-year waiting period to receive Medicare benefits after a disability
determination is made by SSA. If enacted into law, HR 678 would significantly improve the lives of everyone affected by HD.
Support our grassroots HD Movement! Take 2 minutes right now to contact your Representative about HR 678.
Does your Congressman support HR 678? (Click here to see if your Rep is on board). So far, over 100 Representatives have agreed to
cosponsor HR 678, largely because their constituents have asked them to support it. By contacting your Representative,
sharing your personal story, and asking him/her to cosponsor HR 678, you can join our cause! Click here for a sample letter to send to your Congressional representative.
Since we need support from both houses of Congress, you can also send an email asking your two Senators to introduce the Huntington’s Disease Parity Act in the
Senate. Click here for a sample letter to send to your U.S.
Senators.
If your Representative is already a co-sponsor, congratulations! Now invite your family and friends to join our effort by forwarding this message to them. Then, join HDSA Advocacy on Facebook to keep up with the latest news!
Change cannot occur without your help. Persistence is key if we want change. Please join the HDSA advocacy movement
today.
If you would like more information about HDSA Advocacy,
HR 678, or help in scheduling a home office visit with either your Rep or Senators, please contact Jane Kogan at the HDSA national office at jkogan@hdsa.org or visit the HDSA Advocacy Page
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Advocacy - Huntington's
Disease Society of America |
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HDSA is engaged in efforts to protect the rights of our HD families, in addition to bringing into focus the difficult
situations these families encounter to the attention of our federal, state and local elected officials through advocacy.
Educating elected officials and community leaders about the needs of those facing this devastating degenerative disease is
one of the best tools we have at this time in the fight against HD. Read how YOU can help! |
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Map of Congress
click on for map of US to locate your state representatives |
Take action:
E-mail your Senators and Representatives |
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See Latest:
Legislative Priorities |
Capitol Hill Basics
Tips on Telephoning & Writing & Emailing Your Representative including how to contact
them |
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Elected Officials
Get contacts for President & VP, US Congress, State and Local Officials |
Issues & Action
Alerts
Under this section, if you see something you want to write your congress representative on, you
can put in your zip code to get information on them. |
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Bills in Congress
See what issues are currently being discussed in Congress |
Votes In Congress
See what issues are currently being voted on in Congress |
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Government Department/Agency
Search
Department of Health and Human Services - Including all names and contact info as well as agencies
within this department such as: Centers for Medicare & Medicaid Services (formerly HCFA) and the ability to compose a
letter to them on that site! |
Mega Vote - Signup
Track your senators and representatives votes by e-mail! |
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Register To Vote
Begin by clicking the state in which you live, or use the menu below. You
can then enter the information required by your state to register to vote. Once you have entered the required information,
you will be able to print and mail your voter registration application (requires Adobe Acrobat: download). Note: Residents
of New Hampshire,
North Dakota, Wisconsin, and Wyoming are not permitted to use this form. (Secure site) |
**Used with permission from Jean Miller. Source: www.get-me.to/hdlinks**
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